19 November 2025
Caroline's journey with neuropathic pain
Read Caroline's story about how she lives with long-term neuropathic (nerve) pain and the health professionals that have supported her.
People living with neurological conditions like MS are missing out on vital treatment and support as a result of the COVID-19 pandemic, according to a recent survey by the Neurological Alliance (PDF, 1.23MB).
The survey of more than 1,600 people with neurological conditions found that over 7 in 10 respondents experienced delays to their medical appointments as a result of COVID-19.
The survey also found that:
- Almost 4 in 10 people (39%) due to see a neurologist were not given a future date for their delayed appointment
- 19% of respondents felt lonely, 1 in 10 felt hopeless
- 49% of people had found the Government's advice on shielding to be unclear
- 31% had had difficulty accessing their normal food supplies
- 23% had experienced difficulty in obtaining their regular medication
In light of the report's findings, more than 40 organisations, including the MS Trust, have written to Sir Simon Stevens, Chief Executive of NHS England and NHS Improvement, urging him to set out plans to restart neurology services. Read the letter (PDF, 340KB).
David Martin*, MS Trust CEO, commented:
"The Neurological Alliance reports shows the devastating impact the COVID-19 pandemic is having on people with neurological conditions like MS. We know that health and care professionals are going above and beyond to support people with MS in these uncertain times, but with many neurologists, MS nurses and allied health professionals being redeployed during the pandemic, thousands of people are not able to access the life-changing treatments and support they so desperately need. We urge Sir Simon Stevens to listen to the plight of those people living with neurological conditions, and work with us to address the current gaps in treatment, care and support. It is absolutely vital we restart services for those who need it, and ensure they are not left in the dark any longer."
