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News from the MS Trust
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MS Trust staff, MS health professionals and people with MS offer their perspectives on hot topics in the world of MS
Our free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.
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The annual fundraising dinner and auction organised by city philanthropists, The October Club, has raised £500,000 for our Advanced MS Champions project, which will bring urgently needed care and support to people living with the effects of advanced MS.
Results of a small study suggest that clemastine, a drug used to treat allergies, may repair damage to myelin in the optic nerve of people with MS.
Last year Verity Duff from North Northamptonshire came on our foundation course for new MS nurses. We caught up with her to find out about her first year as an MS nurse, and the difference our support has made to her work
Helena is a keen home baker and has been living with MS for over 10 years. Here she contemplates if baking can help with your brain health
- Salt doesn't cause MS
- Fatigue treated with small electric current
- Taxi discrimination challenged
- Stem cells - the genuine potential and the dodgy clinics
- MS drugs in Northern Ireland
Rob shares his experience of taking part in the Scottish Coast to Coast Canoe Challenge for the MS Trust.
- Disease modifying drugs - early vs escalation trial
- Moves to reclassify pregabalin and gabapentin
- Links between cognition and mobility
- Lemtrada remains effective over five years
- Fall risk and bladder dysfunction
- MS disease activity linked to depression and anxiety
Susie Twydell, founder of the accessible travel website wheelchairworld.org, recently returned from a trip to Rwanda, where she fulfilled a lifelong dream of visiting the mountain gorillas. Here she talks about her incredible adventure.
- Stem cell therapy in the UK
- Falls are common in wheelchair users
- Cognitive fatigue and incentives
Maisie, who was diagnosed with MS in June, aged just 14, hosted a My Garden Party in the summer, and raised thousands of pounds to help us make a difference for people with MS. Here she tells us what it meant to fundraise for the MS Trust and why she's determined to live her life like "any other teenager".
- Vitamin D levels and risk of MS
- Concussions in adolescence raises MS risk
- The possible role of bacteria in the gut in MS
- Stem cell therapy review
- Cognition in primary progressive MS
- The benefits of work
- Care for people in Scotland with a neurological condition
- Benefits system criticised
Do you live in or around Leicester? Could you spare a couple of hours to take part in a street collection on 13 or 14 October?
Six superb bands from the south will be rocking the house on Saturday 14 October to raise money for the MS Trust.
Alana adopted her rescue dog Kia five years ago and says it was one of the best decisions she’s ever made. Here, Alana tells us about her journey with MS and the positive impact owning a pet has had on her life.
When Wayne first started experiencing tingling and weakness in his hand and wrist, he ignored it "like a typical bloke". But then six months later, in May this year, he was diagnosed with relapsing remitting MS. Here he tells us about coming to terms with the diagnosis, starting treatment, and why he's determined to "keep smiling".
- Research into alternative therapies is poor
- Cladribine (Mavenclad) use over four years
- Fingolimod in children
- Perceptions of MS in older people
Drawing on her experiences working as a personal trainer and sports nutrition advisor, Diana, who was diagnosed with MS last year, shares her top tips for living well with the condition.
The MS Trust and NHS Lanarkshire are delighted to announce that they have worked together to recruit two new MS specialist nurses, plus a part-time neurology nurse, to support the 1,200 people living with MS in Lanarkshire. The new nurses will begin work later in September.
Yeoman Warder Andy Merry is organising a special dinner and auction at the Tower of London and you’re invited!
- Benefits changes affecting people with MS
- South Korean court sees MS as an occupational disease
- Glandular fever and risk of MS
- Self-management suggestions
- Tecfidera after Tysabri